1.09.2013
12.17.2012
still me...
well, i'm sure most who come here know
our sweet little twin boys
tank walter davey & tom walter davey
went to be with jesus
on november 23.
tank walter davey & tom walter davey
went to be with jesus
on november 23.
i'm not sure how else to continue here without sharing.
(cue dry heave).
(cue dry heave).
on november 20th
i went to have my first scan with the perinatologist at 23 weeks,
my second scan, overall.
my second scan, overall.
during, it was evident, our boys had been
compromised by twin to twin transfusion syndrome.
compromised by twin to twin transfusion syndrome.
a syndrome that has to do with unequal blood flow from the placenta.
there is a doner baby - tom (baby b)
and a recipient - tank (baby a).
there is a doner baby - tom (baby b)
and a recipient - tank (baby a).
the result was that tom had only 2 cm of fluid
while tank had nearly 10 litres.
the reason for my discomfort was evident.
my uterus was extended far beyond where it should have been.
there was pressure on my spine
and lungs.
my skin was stretched and swollen.
in one week's time, i gained, what i now know, was 6 pounds of fluid.
it was not all
"just twins"
as i had kept telling myself.
despite their situation we were encouraged,
the boys seemed good.
even though, we couldn't see a bladder on tom,
their dopplers were normal
and 2 cm. of fluid is better than no cm. of fluid.
things moved quickly.
the boys where fine
but they would not be for long.
action was necessary.
people began praying.
we felt it.
we saw it.
while tank had nearly 10 litres.
the reason for my discomfort was evident.
my uterus was extended far beyond where it should have been.
there was pressure on my spine
and lungs.
my skin was stretched and swollen.
in one week's time, i gained, what i now know, was 6 pounds of fluid.
it was not all
"just twins"
as i had kept telling myself.
despite their situation we were encouraged,
the boys seemed good.
even though, we couldn't see a bladder on tom,
their dopplers were normal
and 2 cm. of fluid is better than no cm. of fluid.
things moved quickly.
the boys where fine
but they would not be for long.
action was necessary.
people began praying.
we felt it.
we saw it.
we were in to the women's hospital on the 22nd.
i was scanned and scanned.
we were given our options.
the numbers were sombre
but the attitude was positive.
i was a perfect candidate for the most aggressive form of treatment,
a lazer procedure.
it made sense to me.
everything fell in to place.
the operating room was scheduled for 7:30 the next morning.
i had peace.
i was not anxious.
the 23rd.
surgery...
labour...
...
all i will say of this day is that
our sons
were beautiful.
they looked so much like their big brother
and we loved them so so much.
i was scanned and scanned.
we were given our options.
the numbers were sombre
but the attitude was positive.
i was a perfect candidate for the most aggressive form of treatment,
a lazer procedure.
it made sense to me.
everything fell in to place.
the operating room was scheduled for 7:30 the next morning.
i had peace.
i was not anxious.
the 23rd.
surgery...
labour...
...
all i will say of this day is that
our sons
were beautiful.
they looked so much like their big brother
and we loved them so so much.
saturday morning, the 24th
our incredible dr. at the women's hospital
came in to our room and sat down with us.
came in to our room and sat down with us.
she had my file.
she asked a few questions.
and then she started to cry.
and then she started to cry.
what we learned and what we are still learning
is that mistakes were made.
is that mistakes were made.
our first scan was not sent for six weeks.
there was poor communication between the first doctor that saw me
and the dr. i was referred to.
there was no follow-up.
and the dr. i was referred to.
there was no follow-up.
my symptoms were glaring and missed.
my first appointment at the perinatologist that took place at 23 weeks
should have happened between 14 and 16 weeks.
this could have should have been caught
before i was so extended,
measuring beyond full term,
uterus ready to labour.
before i was so extended,
measuring beyond full term,
uterus ready to labour.
all of our dr.'s have cried with us.
no one has denied
this should not
have happened
this way.
but it did.
...
so,
how are we doing?
we are damaged.
we feel a mixed, messed, bag of emotions all the time.
we eat and drink wine at nights.
we cry
and pray
and plan our memorial tattoos.
we laugh hysterically.
we hold on together.
we try to sleep
and sometimes take ativan.
we get tired
and awkward with people.
we are sad.
we are
grateful.
we are grateful
for our three beautiful children,
for the intense and overwhelming love of
our family
and friends
and strangers,
for the joy of the lord
and that our saviour
doesn't let us
"cry it out"
alone.
the lord is my shepherd,
i shall not be in want.
he makes me to lie down in green pastures
he leads me beside quiet waters
he restores my soul
he guides me in paths of righteousness for his names sake.
even though i walk the the valley of the shadow of death
i will fear no evil.
for you are with me.
your rod and your staff, they comfort me.
-psalm 23
...
i hate that this happened every day.
but i don't wonder why.
and
i don't wonder how i will deal.
i chose how i would deal
the moment
i gave my life to the lord.
i will let grace stand between me and you.
i will point all of my hurts and questions to the cross.
i will let love grow in the dark places
i will continue to laugh
and blog
and cook dinner for my family.
i will keep being me.
and i will say
over and over again
"hallelujah."
"our love is not victory march
it's a cold and it's a broken
hallelujah."
- taken from leonard cohen's hallelujah
(most likely taken completely out of context - sorry leonard.
also i feel as if i should also give some credit to k.d. lang here.
without whom and her cover on u-tube, i may have not made it through this post)
also this.
no one has denied
this should not
have happened
this way.
but it did.
...
so,
how are we doing?
we are damaged.
we feel a mixed, messed, bag of emotions all the time.
we eat and drink wine at nights.
we cry
and pray
and plan our memorial tattoos.
we laugh hysterically.
we hold on together.
we try to sleep
and sometimes take ativan.
we get tired
and awkward with people.
we are sad.
we are
grateful.
we are grateful
for our three beautiful children,
for the intense and overwhelming love of
our family
and friends
and strangers,
for the joy of the lord
and that our saviour
doesn't let us
"cry it out"
alone.
the lord is my shepherd,
i shall not be in want.
he makes me to lie down in green pastures
he leads me beside quiet waters
he restores my soul
he guides me in paths of righteousness for his names sake.
even though i walk the the valley of the shadow of death
i will fear no evil.
for you are with me.
your rod and your staff, they comfort me.
-psalm 23
...
i hate that this happened every day.
but i don't wonder why.
and
i don't wonder how i will deal.
i chose how i would deal
the moment
i gave my life to the lord.
i will let grace stand between me and you.
i will point all of my hurts and questions to the cross.
i will let love grow in the dark places
i will continue to laugh
and blog
and cook dinner for my family.
i will keep being me.
and i will say
over and over again
"hallelujah."
"our love is not victory march
it's a cold and it's a broken
hallelujah."
- taken from leonard cohen's hallelujah
(most likely taken completely out of context - sorry leonard.
also i feel as if i should also give some credit to k.d. lang here.
without whom and her cover on u-tube, i may have not made it through this post)
also this.
lovers
don't the hours grow shorter as the days go by?
you never get to stop and open your eyes
one day you're waiting for the sky to fall
the next you're dazzled by the beauty of it all
when you're lovers in a dangerous time
lovers in a dangerous time
these fragile bodies of touch and taste
this vibrant skin, this hair like lace
spirits open to the thrust of grace
never a breath you can afford to waste
when you're lovers in a dangerous time
lovers in a dangerous time
when you're lovers in a dangerous time
lovers in a dangerous time
when you're lovers in a dangerous time
sometimes you're made to feel as if your love's a crime
nothing worth having comes without some kind of fight
got to kick at the darkness till it bleeds daylight
-bruce cockburn 1983
11.09.2012
should probably...
change the name of my blog to
"old and pregnant."
..
a dear friend came over last week after one of her appointments.
she is nearing the finish line at 35 weeks.
(cue cowbell).
(cue cowbell).
11.06.2012
10.26.2012
pregnant with two... so far
sob:
comercial for aspca.
women's ice skating nationals - long program.
reading kisses from katie.
having the flu.
trying to tell anyone about the "jane" story from the book kisses from katie (double-ugly-sob).
discussing my grocery budget.
that dang operation christmas child promo video.
church.
select episodes of parks and recreation.
having the flu.
trying to tell anyone about the "jane" story from the book kisses from katie (double-ugly-sob).
discussing my grocery budget.
that dang operation christmas child promo video.
church.
select episodes of parks and recreation.
starving:
my body feels like it has exploded in the last couple of weeks.
i eat approximately 7-10 small
my tummy grumbles and i feel shaky and nauseous.
if i don't eat enough during the day, the grumbles wake me up at 3am, which is cool.
truth be told,
i'm tired of putting food in my mouth.
that is unless it's chocolate cake.
the belly:
it's large and the skin feels stretched tight.
i shudder when i think about how much time i still have.
and i'm extremely grateful for my husband's sweat pants & hoodies.
aches and pains:
yes. already.
so there you have it. a brief summarization of what's going on in regards to my pregnant self. i have an appointment on wednesday and i'm really looking forward to finding out some details, like a due date.
...
here are a few that made me laugh:
bo.
after one morning where all the other kids had finished breakfast and moved on to fun morning chores...
me: "bo, tell your bum to stay on the bench until your breakfast is done!"
bo: "but mom, my bum just likes to follow you around."
after giving our sweet respite baby girl some cuddles.
bo: "mom, is this a robot baby?"
me: "no."
jane.
after whining about wanting to go for ice cream at 9 am.
me: "jane, whining will never help you get what you want. "
jane: "when i'm done with my whine, then can we go for ice cream?"
me: "nope."
char.
while driving past the road crew digging up massive chunks of road on our street.
char: "mom, are they looking for jewl-ies?"
me: "mmm. i don't think so. i think they are working on putting in new water pipes."
char: "ah. that makes more sense."
happy weekend.
10.16.2012
Subscribe to:
Posts (Atom)















